Not so burning (but equally important) questions..
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What is the RemedyRx Beta?
The RemedyRx Beta is a trial of the Remedy app across 50-70 individuals who have signed up to be testers. These testers get exclusive access to the mobile app, as well as new features what are aimed to enhance the experience of a person with a chronic illness.
As a Beta, we expect to see bugs and depend on our testers to highlight these. Additionally, we aim to get feedback on what does and does not work in the app. All this information allows us to build a purposeful health app that truly puts patients in the heart of it.
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What is TestFlight?
TestFlight is an online service for over-the-air installation and testing of mobile applications, currently owned by Apple Inc. Developers sign up with the service to distribute applications to internal or external beta testers, who can subsequently send feedback about the application to developers.
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What is a clinically-validated scale?
A clinically validated scale is what doctors use to benchmark your symptoms against other patients to determine how severe your condition is and what treatment is needed. Like any decision support tool, is not perfect and should not be used in isolation to direct clinical decision making.
The Remedy Beta includes the following clinically validated scales:
SF-36 for Chronic Fatigue Syndrome & Long-COVID
GAD-7 for Anxiety
PHQ-9 for Depression
PASI for Psoriasis
EASI for Atopic Dermatitis
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Does it cost me anything to be a part of this Beta?
Absolutely not! Your engagement & feedback to the app is all we ask for in return for continued use of its features.
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What features can I expect in the Beta?
Head over to App Walkthrough to learn more!
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Is the Remedy app specific to any disease or condition?
The app is designed to be disease-agnostic. Having said that, as we use clinically validated scales, our initial beta has greater interest in Psoriasis, Atopic Dermatitis, Anxiety, Depression, Chronic Fatigue Syndrome & Long-COVID.
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Can I send my information to my clinician or support network?
Yes absolutely. You can download your data using the Export button on the Summary page on the app. This export is only a consolidated document of your data and does not constitute a medical diagnosis. Please continue to refer to a medical professional.
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What happens after 6 weeks?
After successful completion of the 6 week testing period, you will continue to have open access to the app along with first dibs on new feature releases, podcasts & expert talks!
A reminder of the test requirements can be found on the Beta Hub homepage.
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How can I give feedback or get in touch with an actual person?
Check out the Give Feedback page for ways to share your thoughts!
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Can I share the app with my family & friends?
The app is currently only open to those that have signed up to be beta testers. If you do want to share the love, get them to share their details on the beta signup page!
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How can the Remedy app really help me?
Symptoms, medication, emotions, genetic tests, biomarker data, wearable sensors etc - these are all small pieces of the puzzle that is our health. As individuals, we all have a different puzzle - what we call a “patient signature”. As opposed to acute conditions where the cause is perceptible, chronic illnesses require greater scrutiny in how to identify this patient signature and subsequent management.
Remedy is designed to track these pieces easily. We will highlight trends and correlations across all these datapoints to provide personalized reports that can be shared across your support network .
As we collect more accurate information about your experience, will further empower you with personalized insights on relevant clinical trials, clinical decision support to share with your clinician, lifestyle & management approach’s and even potentially connect you to individuals with a similar “patient signature” to you.
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Is my data confidential & secure?
Yes.
The longer answer is that trust is one of our core values at RemedyRx and we know that when you share your data with us, you're placing your trust in us. We take that very seriously.
Our promise to patients is to understand your disease and empower you to drive improvements in your care and medicines. That promise includes empowering patients with their data. It is Remedy Rx’s policy to respect your privacy and comply with any applicable law and regulation regarding any personal information we may collect about you. We believe in and adhere to these privacy principles when being trusted with patient data:
We promise to be fair and transparent
We will use the data only for purposes you agree to
We will collect the data we need
We will maintain accurate data
We keep data for as long as we need
We will maintain the integrity and confidentiality of the data
We agree to be accountable for the data we maintain